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How the National Society for Epilepsy can help you

National Society for Epilepsy

Mission statement:

The National Society for Epilepsy is striving for a world without epilepsy. In the meantime it will seek to enhance the health and well-being of people with epilepsy by improving clinical treatment and care, and by the provision of health information to people with epilepsy, to health professionals and the general public.
Key aims:
In striving to achieve its mission the Society will have four key aims:
1. The eradication of epilepsy in all its forms and, in the meantime, to strive for improvements in medical treatments.
2. To improve the clinical and care services provided to people with epilepsy by the NSE and health professionals elsewhere.
3. To increase public understanding about epilepsy as a medical condition and how to respond appropriately to a seizure.
4. To get accurate, understandable and relevant health information to all people with epilepsy and their carers as and when they need it.

The Society is committed to increasing the awareness and understanding of epilepsy among those people whose lives are directly affected by the condition, also among the wider public, professionals and in Government.

To achieve this, the charity provides a wide range of information resources and delivers training to lay and professional audiences both on-site at the Society's headquarters in Chalfont St Peter, Buckinghamshire, and off-site anywhere in the country.

The NSE's confidential information helpline, manned by trained staff, is available Monday to Friday, 10am to 4pm on 01494 601400. It is open to all people with an interest in epilepsy, whether they or a family member have the condition, know or care for someone with epilepsy or are a professional working in the field of epilepsy. An important aspect of the service is the provision of a listening ear to enable callers to talk through individual issues.

The Society's comprehensive website at www.epilepsynse.org.uk has many useful sections including Explaining Epilepsy, Drug Treatment, Women and Epilepsy, Pregnancy and Childcare, Complementary Therapies, Leisure, Driving and Travel, Employment and Education.  Diagnostic techniques such as Magnetic Resonance Imaging and EEG (electroencephalogram) are explained.  Case studies are included and links are provided to several other useful websites.

A new website, specifically for professional audiences, has just been launched at www.e-epilepsy.org.uk.

Information leaflets covering a wide range of topics are available and the Society offers a range of other resources including videos and a CDRom.

Training courses in epilepsy are delivered both on and off-site, again to the full spectrum of lay and professional people.  These can be tailor-made to suit requirements of individual groups or organisations.

In addition, the Society actively promotes epilepsy issues to a wide range of audiences, through its press office, participating in specific campaigns such as National Epilepsy Week, and ongoing media relations. This has included offering support to press, TV and radio journalists to ensure relevant and accurate information about epilepsy is appropriately conveyed to the general public. The online press office contains current and archived press releases as well as background information for journalists. Media enquiries should be directed to: Press Office: 01494 601417 or 601401.

If keeping up to date with epilepsy issues and research is your priority, then why not join the Membership Scheme. It's a great way to receive the very latest in epilepsy information.

If you have a specific query, please contact the NSE at the address below:
The National Society for Epilepsy
Chesham Lane
Chalfont St Peter
Bucks SL9 0RJ
UK


Tel: 01494 601300
Fax: 01494 871927


UK Epilepsy Helpline: 01494 601400
(10am-4pm, Monday to Friday)


Website: www.epilepsynse.org.uk 

We are indebited to the National Society for Epilepsy for their help in compiling this section.