Learning disability has been labelled "mental handicap" and "mental
retardation" in the past. Some doctors still speak of it in such terms
believing it more accurately conveys the difficulties such individuals
face. The new term "general learning disability" arose because of the
stigma associated with the term "mental handicap" and because the extent
of the handicap varies enormously from individual to individual. There
are many causes, but in many cases it is very difficult to know exactly
what causes the learning disability. This can be hard for parents to
cope with. Some causes are due to genetic factors, infections before
birth, damage to the brain or infections of the brain after birth.
Complete assessment of a child can take some time because it is
difficult to assess for intellectual functioning and social skills in
infants.
Children with general learning difficulty do not develop the skills
which would otherwise equipment them to cope with life as other young
people do. This shows up in their intellectual and general coping
abilities with poor language development, motor skills (movement) and
social abilities. Children with general learning disability are not
suffering from a mental illness, but they are more likely than other
individuals to develop one. They are certainly more likely to display
emotional and behavioural disorders. It is important that these are not
missed and seen as "part of their condition" because families and
children can receive specific help for these types of problems.
Children with learning difficulties may have other disabilities such
as physical disabilities, hearing difficulties, autism, speech and
language difficulties and epilepsy. These difficulties can lead to
intense frustration in communicating with other people and coping with
life situations. It is important to remember that the degree of
learning disability is on a continuum from very mild to severe and that
each child is different.
Effects on the family
A diagnosis of learning difficulty can be devastating to parents.
Every parent wants their child to be "normal". It is common for parents
to feel guilty, to wonder if it is down to one parent or the other, to
have feelings of wanting to run away from the baby, to become depressed,
feel ashamed, to go off sex with your partner, to become
over-protective of the baby - a whole range of feelings that you may
wish to discuss with your partner, family, doctor or a counsellor.
Often, these feelings develop later on when the extent of your
child's disability become clearer. This can happen at times of a rite
of passage - such as reaching school age, becoming a teenager, or
reaching 18. At these times it really hits home how your child is
different. The feelings of loss can be very powerful. Seeking help
from a counsellor or doctor at such times is important for you and your
child if you feel you are not coping.
Over time, most parents come to accept the limitations their child
may present. You will come to see their strengths too. Most parents
love their child and develop a relationship with them that recognises
both their difficulties and positive attributes. Some parents become
very engrossed and focussed on their child and this can lead to
difficulties. It is natural to want to protect your child and to
develop their strengths. Try not to overprotect your child and take over
their complete management. You have to weigh up the emotional and
physical cost of taking on sole responsibility. Tensions can develop
between professionals and parents over the issue of how a child should
be helped to develop their potential. Professionals can forget how
difficult it is for families. Sometimes families feel they are pretty
much left on their own without adequate support or advice. If this is
the case, ask what is available and make a fuss if you don't feel you
are getting the help you need.
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